Life in No Man’s Land.

Life in No-Man’s Land

            I have a secret.  I dare you to guess it.  To judge me.  Am I preoccupied with vanity, ruthless in my pursuit of the “ideal body size”?  Am I purposely defiant, an attention seeker and an egomaniac?  Do I dress in black, don chains and piercings?  Am I always crying, always complaining, always overtly sad?  Anorexia nervosa.  Clinical depression.  Generalized anxiety.  Do you think I’m eccentric?  Unstable?  Insane?

My pastimes include watching The Office and flipping through the latest issue of Cosmo or Marie Claire.  I hang out with friends and go to the mall with my sister.  I captained a Relay for Life team, was Treasurer of SADD* two years running.  I have loving parents and a stable home life.  I don’t fit very well into the box society has appropriated for the mentally ill.  I don’t match the stereotypes. I don’t embody the mold.  What if I told you, however, that I do exemplify the norm; I bear the all too common, though rarely talked about, risk factors and characteristics.  One in four people worldwide suffer with a mental health disorder, yet these conditions remain largely taboo, discussion of them extinguished by social stigma and discomfort.

Maybe my secret is that I’m just like you. Who would have guessed?

###

A Parallel Universe

As I left the shop my glance met his, and he gave me a look of such terrible intimacy that I cringed.  I know who you are, said his look.  What were we, that they could know us so quickly and so well? . . .The question was, What could we do?  Could we get up every morning and take showers and put on clothes and go to work?  Could we think straight?  Could we not say crazy things when they occurred to us?  Some of us could, some of us couldn’t.  In the world’s terms, though, all of us were tainted.

- Susanna Kaysen, Girl, Interrupted

Asylum.  Sanitarium. Mad House.  Loony Bin.  Susanna Kaysen spent two years in one of these notorious psychiatric hospitals, admitted at a mere eighteen years of age.  I was eighteen; could this have been me?  Weighty metal doors and thick panes of glass separate residents from “the outside,” protecting them.  Or so they say.  Spend enough breaths inhaling the lingering scent that characterizes careful sanitation, squander enough steps pacing the somber hallways, counting each passing minute, another precious moment of life escaping your grasp, and you can only begin to wonder.  Are they protecting me from what lies beyond these imposing walls, or are they protecting it from me?

Kaysen suffered from Borderline Personality Disorder, but it doesn’t matter; she could have just as easily suffered from bipolar disorder, schizophrenia, an eating disorder, it would still be the same.  Wasting away within the strict confines of the psych ward, she was just another patient to deal with, another nut case to treat.  This attitude seems to transcend Kaysen’s 1960s, infecting society to this day.  Will they look at me differently?  What have I become?

Diagnosis of a mental health disorder remains an ominous notion, a condemnation to a life filled with incessant judgment and fear, averted glances and nervous shudders, degrading pity and accusatory stares.  I know what you are (124).  Do they?  Do they really know us at all?

It is not unusual for society to fear the unknown, but why is it that despite these recent decades of rapid social change, mental illness remains so frighteningly unfamiliar?  It’s no surprise that many of those who suffer from such disorders delay seeking help.  Would you really volunteer yourself to be the object of such intense stigmatization?  Perhaps the better question: would you leave yourself alone with someone who had been in the “loony bin”?  With a mental patient?  With me?

###

West of Wonderland

As tempting as this health thing is, the idea of going back to my familiar obsessions is more so. I want out. I want my bones and my books back. I become the star patient. I talk them into letting me go to college, and they finally agree. I want to be rid of who I am, go back to the place where I wasn’t a [screwup], where I was good at something, instead of a place where all I do is talk about how [screwed] up I am. I’ve got to get out.

- Marya Hornbacher, Madness

I do not have a problem; I can stop whenever I want to. I will stop, as soon as I go to college, as soon as I fit into these jeans, as soon as I’m happy. Going to all the appointments, seeing the dietician and the therapist, attending a partial hospitalization program? Just playing the game, buying myself time to convince them all that I’m as sane as I know I am. Sure, I’m a little underweight, but it’s not as if I’m not eating. I eat all the time, six regular meals, actually. An anorexic does not eat six times a day. An anorexic is not as intelligent or driven as I am. An anorexic could not handle a part time job and a handful of AP classes like I do. I just cannot possibly suffer from anorexia, you see, it is simply absurd. Wait until I get to college, then I’ll show you! All your worrying and doubting, your trepidations and warnings, will be in vain. I am going to soar.

An observer could have easily detected the fundamental flaw in my reasoning: I do, in fact, suffer from anorexia. Not unlike many victims before me, and undoubtedly future sufferers as well, it would take a forced hospitalization and weeks of intensive therapy to convince me that I even had a problem. This denial had become deeply entrenched in my identity, almost as engrained in my mind as the eating disorder itself. Anorexia nervosa, among multitudes of other mental health disorders, bestows its prisoners with the ability to rationalize the inherently irrational, allowing them to become blind to the most apparent of symptoms. Clumps of hair clogging the shower drain? I must need to change shampoo. Having heart palpitations? Well, so would anyone after walking up Cardiac Hill. Fortunately, I was torn from my delusions early, ripped from the tight grasp of the disease before it demonstrated the true potential of its physical destruction. Many are not as lucky; Hornbacher would spend her sophomore year of college lying in a hospital bed at a mere fifty-two pounds, half-dead and ragged captive of her devastating disorder.

Examining Hornbacher’s extensive history of drug abuse and eating disordered behavior, it would seem ludicrous to deny that she was at least partially responsible for her ultimate failure to stay in school. If she really wanted to return to the place where she “wasn’t a screwup,” why didn’t she just stop using behaviors? How could she possibly be “good at something” if her life revolved squarely around cycles of starvation and self-abuse? Mental illness contorts the mind in ways unfathomable to an outside observer. Unlike cancer, diabetes, or heart disease, mental health disorders cannot be evaluated objectively based on x-rays, blood tests, or biopsies. The only evidence of faulty mental health exists in the thoughts of the afflicted.

But these thoughts are dangerous; they can torment, they can kill.  Osteoporosis, organ failure, or cardiac arrest—be it the result of chronic physical illness or tortured emotional wellbeing—is agony all the same.  Pain is not any less miserable, yet insurance companies and healthcare providers all too frequently decline the psychologically-suffering the resources they need.  The resources that would save their lives.

###

Land of the Free

Just like the Cheshire cat, someday I will suddenly leave, but the artificial warmth of my smile, that phony, clownish curve, the kind you see on miserably sad people and villains in Disney movies, will remain behind as an ironic remnant. I am the girl you see in the photograph from some party someplace or some picnic in the park, the one who is in fact soon to be gone.

- Elizabeth Wurtzel, Prozac Nation

They had probably met.  Brushed past each other at a party or crossed paths at Plugged-In.  They hung around the same group of people, after all.  She found his Facebook page, tried in vain to find his image buried somewhere in her memory.  He was just another person she had casually met, a face in a crowd.  They were seventeen, just a couple of juniors in high school, my sister and he.  They were having fun, just learning to live.  Except he wasn’t.  But how was she to know?

Matt Hurley* died on a Thursday in February of 2011.  The fourth student in two years that Needham High School lost to suicide.

He had been popular; he had a lot of friends.  He had devoted a considerable amount of time to volunteer work, had played guitar in a band to raise money for charity through Needham’s Plugged-In program.  He belonged to an upper-middle class family, was relatively wealthy, had a twin brother.  No one can say what brought him to that final decision, what prompted him to take his own life.  All the community can do now is mourn and take steps to ensure such tragedy doesn’t occur again.

But what steps do they have left to take?  Growing up, my friends were nearly exclusively from Needham; we attended St. Joseph Catholic School in the affluent suburb’s central square.  To the horror of many of our parents, the school began running suicide awareness programs when we were eleven.  Every year that I was in middle school, someone in the public school system died by suicide.  Every year our teachers assailed us with the warning signs, cautioned us to seek help at the first sign of trouble.  With such ill success, however, parents are beginning to suspect that these programs aren’t helping us; in fact, they may be hurting us.

In recent years this argument has become more pervasive, amid Needham High School’s futile attempts to protect its student body.  Are we making these victims martyrs?  Are we glamorizing their decision, sheltering students from the harsh reality of what suicide really is?  A permanent solution to a temporary problem.  What message are we sending by bringing so much attention to these heartbreaking deaths?  What other option do we have?  What else can we do?

Matt Hurley’s family will certainly never know.

###

Sixty-two days. For sixty-two days, I occupied one of the thirteen beds on the third floor of Cambridge Eating Disorder Center in the heart of Harvard Square. For sixty-two nights, I tossed and turned in an Ativan-induced slumber, trying to ignore the noise of the RC patrolling the halls, the periodic flash of harsh, fluorescent light as she checked our beds, monitoring for missing (or misbehaving) patients. For two and a half weeks I wasn’t allowed to go outside, my weight too low to be considered “stable” enough to interact with the non-disordered world. For over two months my privileges were based solely on compliance and weight gain. I gave up the right to go to the bathroom or use a pair of scissors without permission. I gave up my freshman year of college. My freedom. My self-respect. How could I, an otherwise intelligent and responsible young woman, have let things get this bad? How many other Americans are asking themselves the same question? How many children are already lost?

#

Works Cited

Hornbacher, Marya. Madness: a Bipolar Life. Boston: Houghton Mifflin, 2008. Print.

Kaysen, Susanna. Girl, Interrupted. New York: Vintage, 1994. Print.

“Startling Statistics About Mental Illness | ASHA International.” ASHA International | A Source

of Hope for All Touched by Mental Illness. ASHA International, 2007. Web. 22 Sept.

2011. <http://www.myasha.org/node/12&gt;.

“WHO | Mental Health: Strengthening Our Response.” Mental Health: Strengthening Our

Response. The World Health Organization, Sept. 2010. Web. 22 Sept. 2011.

<http://www.who.int/mediacentre/factsheets/fs220/en/index.html&gt;.

Wurtzel, Elizabeth. Prozac Nation: Young and Depressed in America. Boston: Houghton

Mifflin, 1994. Print.


* Students Against Destructive Decisions

* Name has been changed to respect the family’s confidentiality

Feels Like Home.

I’ve been seriously neglecting my wordpress for some time now, and was recently reminded by a good friend of the value it contains.  From now on, I intend to post fairly frequently again, stretch my writing muscles that have been so sorely missed since I left school.  Again.  Which brings me to my next topic…

Just to catch you up–I went into treatment again on February 1, 2012 and was just recently discharged (actually just a week ago today!).  Yes, I relapsed.  Yes, I took another medical leave.  Yes, I got treatment.  Now I have a second chance to succeed, to go on and live the life I imagined and stored somewhere in my subconscious all those years ago. It’s not easy–in fact, it’s one of the most difficult undertakings that I can imagine–but it’s worth it.  That’s what these past weeks have been teaching me to appreciate:  I am worth it.  I am worth the time and the energy.  I am worth the worry and the concern.  I am worth the love and the affection.  My life is worth recovering for.  I may not know exactly what I want yet, but I do know what I don’t want.

  • I don’t want to spend the rest of my life in and out of hospitals.
  • I don’t want to wake up in physical agony.
  • I don’t want to count calories or measurements or weight.
  • I don’t want to be reduced to my illness.
  • I don’t want to be the girl who I was eleven weeks ago.

It’s a daily battle.  I struggle to remind myself every day that this:

is so much more healthy, happy, and attractive than this:

Despite all the negativity my eating disorder manages to spew at me, this I know to be true:   no one likes to look at/talk to/deal with/be around a walking, talking skeleton.  Not just a physical skeleton, mind you, but a shell of a human being, someone so consumed by numbers and food that she couldn’t bear to fill her mind with anything else.  Absolutely empty.

I want my life to be full.  Full of love.  Full of adventure.  Full of happiness.  I may not know what recovery brings, but I do know that being sick entails, and it doesn’t have a whole lot to offer me anymore.

Comments?  Thoughts?  Suggestions?  I would love to hear from you! :)

Change.

Hey there!  So I know I haven’t posted in a while, it’s been pretty hectic and unfortunately I haven’t had much time or inspiration to commit to my blog.

I have new and exciting news though!  I’ve been lured by the fun features of tumblr and am trying out a relocation of sorts to that host service.

Stay updated at http://approachingthehorizon.tumbr.com!

I promise (at least I sincerely hope) I’ll be posting far more frequently there.

Hate (I Really Really Really Don’t Like You)

So today one of my friends posed the question what effect has the mass media had on your body image?  She was researching for a school project, but this really got me thinking.

The media glorifies women with a “waif” like figure, their euphemism for emaciated, starving, unhealthy women who very likely abuse the eating disordered behavior in order to maintain their unnatural physique.  It’s so easy to see models strutting down the runway or appearing in print ads and start to judge yourself.  It may be subconscious, the traits of the media’s “desirable” women become our standards of beauty.  It doesn’t matter that these women are styled to perfection, primped and prepped in every way possible and even retouched to hide human flaws.

When it comes to celebrities the media is no less critical, praising the “bikini ready” starlets and quickly labeling anyone larger than a size 2 as “curvy” or “bigger”.  Natural features, such as wrinkles and cellulite, become fodder for the entertainment circuit; flaws are zoomed in on and celebrities are torn apart for “letting themselves go”.  What’s wrong with embracing your natural body shape?  Starving and overexercising in the pursuit of perfection by the mass media’s criteria do not lend themselves to a happy lifestyle.  Physical bodies are morphed into a reflection of a person’s worth, while his or her thoughts or feelings are left unexamined.

The fact of the matter is the media will not likely change, at least not anytime soon.  Women will continue to be bombarded with images of unhealthy, unnatural women, and will continue to base part of their self worth on their appearance.  I’m not built like a model or a celebrity, I never will be, and that’s alright by me.  I can eat and be active in a healthy way while still enjoying my life and taking steps to accept my body as beautiful exactly the way it’s meant to be, even if it may not be what the popular press deems acceptable or attractive.  I personally like to think that in the real world, outside of runways and photoshoots, stylists and personal trainers, people can ignore our natural “imperfections” and accept us and find beauty in everyone based not on their appearance but on who they are as a person.

Today I’m going to enjoy my wide hips and high forehead, they make me just that much different from everyone else.  Who wants to be a lookalike?  I’m worth more than that.  So are you.

From Great Heights

So the regular routine of yoga and appointments has become rather monotonous.  Though I enjoy my yoga time, I wanted to toss it up a bit, add a little variety to my life.  Yesterday I was finally brave enough to attempt a new challenge – rock climbing.  Living in New England and considering my lack of balance and coordination, it was indoor rock climbing of course, but nevertheless my fear of heights seemed to be an obstacle.  I’ve been to rock gyms before, but that was when I was in middle school, and I was slightly more fearless.  With my harness secured and  climbing shoes fastened, though, I was really to take on the wall.

I actually ended up surprising myself.  I made it to the top of the wall and managed not to give up or freak out when a wall proved too difficult.  I gave it everything I had and in the end I was pretty proud of myself.  I did something I was scared to do, and while I was hanging there on that wall, carefully planning my next move, I felt better than I have in a long time.  I’m strong, capable, and independent.  And apparently I have a new hobby.  See you at the top!

Somewhere Over the Rainbow.

I haven’t posted anything in so long!  I’d like to say it’s because I’ve been too busy, but that wouldn’t be true.  Aside from yoga and appointments, I have very few responsibilities.  Let’s catch up a little bit.

This past weekend I visited the college I was removed from.  Living in a suite, I made many great friends in the six weeks before I was sent home and I was determined to follow through on my visit, push through the anxiety and fear that seem to linger, despite my best efforts to shoo them away.  It was a challenge for my ED being back at school, returning to the dining hall without using behaviors was no easy feat and sticking to a meal plan in a college environment proved difficult.  I’m happy to report I got through it, though, I was, for the most part, meal plan compliant and I felt for the first time in a very long time that I was back where I belonged.  The weekend came and went though, and here I am, sitting at home hours away from the place I really want to be, the people I really want to be with.

Since I’ve returned I’ve seemed to be plagued by the unhappiness and hopelessness that fueled my eating disorder in the first place.  Though I’m in a different place, physically and emotionally, and I’m not using behaviors, I’ve realized that I’m still grieving what I lost.  Because as silly and nerdy as it sounds, school was my whole world, my reason to get up in the morning and power through the day.  For once in my life I’m just going to sit here and feel it, I don’t seem to have any other choice.

I don’t been to be a downer, I want to keep the overall message of this blog to be positive and hopeful, but I want it to be honest as well.  This isn’t easy, there’s no shortcut I can take and no way to change the past.  I just have to accept what’s happening in the here and now, and stop dwelling on the past or future.

Right now I’m watching one of my favorite tv shows.

Right now I’m making ‘just do what makes you happy’ my mantra.

Right now I’m one moment closer to recovery then when I started this post.

Right now I’m moving forward.

Viva la Vida.

Good news!  Just wanted to let you all know that not only did I make it through dinner with my friends yesterday, I actually enjoyed myself!  I didn’t stress over calories or serving size and I had an amazing time.

Happy Birthday to Me!